Tarboro girl, 6, lobbys for arthritis on Capitol Hill

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March 23, 2009

For The Daily Southerner The Daily Southerner Mon Mar 23, 2009, 11:42 AM EDT

Six-year-old Kaylee Westbrook, a first-grader at Stocks Elementary School, traveled to Washington, D.C. on March 2-4 with her mother Karen Dew and grandmother Patricia Roberson.

Kaylee was not there for sightseeing, but for the Arthritis Advocacy and Kids Summit. Kaylee, along with approximately 350 advocates traveled to Capitol Hill to see representatives and senators to gain their support for the Arthritis Prevention, Control and Cure Act of 2009, better known as HR1210.

Kaylee attended training before going to Capitol Hill in advocacy and wrote letters to hand deliver to the representatives and senators. All advocates were trying to gain support for bill HR1210 to gain funding for arthritis research and prevention.

Kaylee met many of the representatives aids and was able to meet with Sen. Kay Hagan, D-N.C., personally.

The trip was educational and a learning experience for Kaylee, as well as her mom and grandmother.

Kaylee was diagnosed with Juvenile Rheumatoid Arthritis (JRA) at age 2 and now has Uveitis, an eye inflammatory disease, that left untreated, can lead to blindness. Uveitis is a condition some JRA kids develop. Kaylee gets Humira and Methotrexate injections to help control her JRA and the Uveitis. She also takes daily meds to help control the pain and stiffness.

More than 300,0000 children in the U.S. suffer from some form of Juvenile Arthritis, yet so few people are aware of kids having arthritis.

Kaylee enjoyed the trip and raising awareness in letting people in Congress know "Kids get arthritis,too!"

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Tarboro girl, 6, lobbys for arthritis on Capitol Hill

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